IT'S ME!

I'm back.  I have limited capabilities here on these pediatric computers so I haven't been able to do much as far as communication goes.  Thank you to Jenny for being my temporary mouthpiece.  This is our third day here at Mass General Hospital and we have felt very fortunate to be in such great and capable hands.  The staff is amazing and so kind.  Besides missing home and our PICU family we have been very well taken care of.  It's comforting to know that they are here for us if we ever need to come here again.  The DHART transport team will be here in a couple of hours.  They opened up a bed for Benny.  It will feel good to be back on familiar grounds.  The events from the last couple of nights have been a prolonged apnea episode.  Ben stopped breathing, not sure why?  The vent kicked in a back-up rate and then he proceeded to "ride" the vent for about 10 minutes before spontaneously breathing on his own.  Last night his heart stopped for about 8 seconds.  I woke up this morning and saw the EKG leads all over his chest.  There was no intervention needed, it started back up on its own.  Slightly alarming considering this has never happened before - atleast not documented.  They also took bloodwork to make sure things looked good and they did.  Now we wait for the DHART team to come.  I'll post more later.