Thursday, January 28, 2010

IT'S ME!

I'm back.  I have limited capabilities here on these pediatric computers so I haven't been able to do much as far as communication goes.  Thank you to Jenny for being my temporary mouthpiece.  This is our third day here at Mass General Hospital and we have felt very fortunate to be in such great and capable hands.  The staff is amazing and so kind.  Besides missing home and our PICU family we have been very well taken care of.  It's comforting to know that they are here for us if we ever need to come here again.  The DHART transport team will be here in a couple of hours.  They opened up a bed for Benny.  It will feel good to be back on familiar grounds.  The events from the last couple of nights have been a prolonged apnea episode.  Ben stopped breathing, not sure why?  The vent kicked in a back-up rate and then he proceeded to "ride" the vent for about 10 minutes before spontaneously breathing on his own.  Last night his heart stopped for about 8 seconds.  I woke up this morning and saw the EKG leads all over his chest.  There was no intervention needed, it started back up on its own.  Slightly alarming considering this has never happened before - atleast not documented.  They also took bloodwork to make sure things looked good and they did.  Now we wait for the DHART team to come.  I'll post more later.

8 comments:

Smilin' sunshine said...

Hope everything turns out great and you are back home soon!

At least you are getting closer to home!

Cindi said...

Hate that that boy is not feeling great...to say the least. Love that such excellent care is available for him...love you and your sweet family!

April said...

Oh my goodness! Sounds like Ben is keeping them on their toes at night. Hope you get some answers and that these episodes are flukey!

ellen said...

I'm sad I won't be able to see you tonight but glad you are headed back to N.H.

Junior said...

You guys are in our prayers, give Ben hugs from us.

Mostly Stacie's Space said...

Keep breathing momma. :) Glad you get to go to you home away from home. Love you, give Benny kisses from Idaho.

Jo Jo said...

Huh. Never a dull moment with that boy. Glad you got to see a few visitors before you had up north. Mom said when you go to dart, it's like a party.

shirlgirl said...

Just got my computer back and trying to read up on all the blogs. Sorry Benji ended up in the hospital again. Give him big hugs and kisses from us.