Having a disabled child comes with many difficult decisions. Ones that have brought me to my knees more times than I can count. A few years ago we had the discussion of a DNR. (do not resuscitate) Do we make Ben a DNR? The doctor's wanted to know. I hated that I was forced to talk about this situation concerning one of my children and knowing that it wasn't even a question with the others. It wasn't fair. Ben's life was a debate of "Quality vs. Quantity".
We're a QUALITY type of family.
So back a couple years, after the decision was finalized...a nurse brought a BLACK DNR bracelet into the room for Ben to wear. (Ben's labled as a "partial DNR") I was sick to my stomach. I told the nurse (swallowing back the tears) that there was NO WAY I was slapping that baby onto my child. It was hard enough having him LABLED in the chart, HE didn't need to have the label on his body. Fast forward a few years and here we are again. The hospital is tightening their policies. They want the bracelets on the patients. I'm still refusing. Have you noticed that the color is now purple? As if that's supposed to make it prettier? More appealing? Whatever. Call me stubborn, call me difficult...but I continue to REFUSE.