Sunday, October 18, 2009

HIGH MAINTENANCE

Ben=LOTS of equipment.
Here's the latest, greatest!
It's the cadillac of Home Vents.
Equipment...it's part of the privilege of taking care of Benjamin. Most I could do without. The problem is, Ben CAN'T! He needs it and I'm okay with that. It's always a little overwhelming at first. I remember the day he came home from the hospital. We didn't just carry out a baby in a carseat with a diaper bag in tow. He came with oxygen, a suction machine, lots of suction cathetars, a pulse oximeter, feeding tube supplies, and medication. It became our new normal. Every month I order new supplies. Every month, lots and lots of boxes come to our doorstep.
It's like Christmas!
(except not)
As he grows, so do his needs. We gradually added formula, beneprotein and benefiber, g-tube supplies, diapers, and chucks. Then he was trached. That came with a compressor and heated humidification hardware, tubes, wires, a concentrator, trach masks and trachs. Throw in a cough assist and chest therapy machine. Now he is cathed...that means foley cathetars, cathetar kits, urinary bags, and syringes. The list keeps growing. The latest? A vent. More equipment, more supplies. I'm a little overwhelmed, but I know this feeling will pass.
It always does.

11 comments:

April said...

Oh, I can completely relate to the boxes of supplies, the room so full of equipment that it sounds like the subway-- and a heart so full of love, you'll do whatever it takes!
My heart is with you! You are doing a wonderful job! Ben is a lucky boy! LOVE YOU

Becky said...

April! I'm LAUGHING! "The room so full of equipment that it sounds like the subway"...SO TRUE! :)

LL said...

Loved what April said..."a heart so full of love, you'll do whatever it takes!"
Very sweet and so true! You are the PERFECT example of COME WHAT MAY AND LOVE IT! I love and admire you my friend.
And to Ben I say HIGH MAINTENANCE! I say that with love, because he's worth all the bells and whistles!

Mostly Stacie's Space said...

It's too bad that your norm sound like a medical supply store. :P You will get used to it and life will go on and you get to bring Ben home. :) Hang in there. Love you. Stacie

Adam and Anya said...

WOWSERS!! Is this your family room? Where is this? You better receive an honorary doctor's degree any day now!

Jenny said...

Looks like you need a degree just to turn that thing on!

Jo Jo said...

You are prepping your daughter to be a whiz of a nurse, what a blessing! Hear your getting new shelves out of this, what a blessing! He'll do a great job.

Emily B. said...

Just like Christmas! Hang in there. :)

shirlgirl said...

Holy moly, Becky! You'll have to buy a bigger house just to house all of Ben's equipment. Jo Jo is right--you are truly prepping Stevie to become the best nurse possible. Bless you all.

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Alana said...

At what point does Ben and his stuff get their own room? own mailing address?